Monday, March 5, 2012

Mar 5 - Standing Still Hurts...Day 30/30

Today is the day the "Induction" period is supposed to be officially over. Jessie slept most all of yesterday and had a fever off and on: mostly on. Today has been much better. Her last fever was at 2 am this morning. A physical therapist came by to teach Jessie some exercises to help her legs and arms which she has been doing religiously. She also taught her how to "prepare" her legs to be ready to stand up so they won't hurt so much. We also have done several laps walking around the unit. The nurses all get a chuckle because she can't stop and stand still. She has to keep moving or the pain gets worse. She keeps going or kicks from side to side if she needs to be in one place. But at least she is not in tears anymore. :-) The docs don't really know where the leg pain is coming from. It could be several things. The most likely thing is probably the ATRA medicine which she needs to take to get rid of the protein on the outside of the bad cells. One of it's side effects is muscle pain.  Another theory is muscle deterioration and/or tightning due to being in bed so much for the past month.
They disconnected the IV fluids to see how she does without them. She is back to drinking 5-6 20 oz bottles of water (mixed in with Gatorade) a day. I will go home tonight to see my other offspring and my husband (who is that guy?). He has been doing a great job holding down the fort and getting projects done around the house. Good job honey :-). Maybe tomorrow will be another launch homeward bound. I hope.

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