Yesterday I felt like a tidal wave was coming my way and there was nothing I could do to avoid it. Jessie had started to get fevers from various infections in her body a day or so before. The docs were starting multiple antibiotics and then just as her headaches were subsiding , they said they scheduled Jess for another LP to rule out infection specifically viral meningitis. Whoa.
How the heck could she have picked something like that up when I've been bathing everything and everyone in purell?? This is how these horrible headaches started in the first place - from cerebral spinal fluid leakage from the LP. There is no way that I wanted her to go through those headaches again. Poor thing was dry heaving from the head pain after getting up to go to the bathroom. Oh no. Not happening. Her headaches have just gotten much better. No more torture please. Late yesterday a chemo rash appeared on her arms and her knees. Doctor said it was fire engine red. Today it has subsided. She is doing the sprinting thing again from place to place because her leg muscles hurt so much. It looks so funny. I'm trying hard not to giggle.
Somehow we seemed to have avoided that wave this time. They started the antibiotics early this time so no 103 fevers. She is afebrile. Her rash is barely there. Doctor said sometimes patients get a sunburn-like red and then blister and peel and it is VERY painful. Thank God we seemed to have missed that one.
Although she has almost lost all her hair again- that was expected. Still a sore point. I think her short do had grown on her somewhat even though she says she hated it. She attempted to dye her hair blue thinking that it would all fall out anyway, but ended up dying her scalp blue instead! Mostly it has washed out, but with the thin hair there is a light blue sheen.
Good news today is that her ANC is 50. It has been 0 for seven days straight. We know it will probably bobble up and down before it takes a steady turn up, but it's nice to know her body is fighting. Keep up the fight my love!!
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