Tuesday, March 6, 2012

Mar 6 - Day 31/30?? Who wrote this protocol?

I woke thinking how great it was going to be today bringing her home. I got the other kids to school and was eating breakfast when I got a text "I was fever free until now". Bummer. Doesn't even begin to describe my disappointment. I knew they wouldn't be letting her go home today. I sucked it up and texted back something about what to bring her today.
The doctors came in Jessie's room for rounds today. They were pleased that she responded well to Tylenol this morning and if she stays fever free through tomorrow morning, she will be express released. I guess that's like the express checkout aisle at the grocery store. Then I found out later from the nurse that they are all full and kids are waiting in the clinic for a bed on the unit. Wow. Whose running a sale on cancer? Sorry Mary. No room in the inn.
So hopefully she's coming home tomorrow morning. We had an appointment next Tuesday for a bone marrow check. Those results will determine when she can "see real people" as she puts it. I call it going to school. :-)

Leg pain is getting better with each walk and each stretch. She had some skin break down with the sutures and skin near the PICC line. The wound care specialists and a nurse Practitioner came in and changed it from sutures to a stat lock and put some silver powder (yes it really has actual silver in it- apparently a healing agent) on it and a new dressing. That was the excitement for the morning. Besides the chicken that Mike sacrificed to make Jessie's rash on her legs magically disappear. He told her he was sorry for the mess it made in her room at home, but he would just throw some more clothes on top of it. His (and hers) warped sense of humor.

1 comment:

  1. More Chickens!!':) it's a family thing!:) More chickens!! No one in the family should be sad today....MY birthday! that gives me extra super chicken power!!!!! Or something....:). I love you Jessie....keep on pluckin on!:)

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